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From Pediatric to Adult Care: Navigating Life with a Complex Heart Condition

Open Heart Surgery with Boots
Open Heart Surgery with Boots
Episode • Nov 21, 2023 • 32m

#25 Join host Boots Knighton as she welcomes Leigh Kamping-Carder, the mind behind The Heart Dialogues, to delve into the realities of living with a complex heart defect. She shares her journey of childhood surgeries from tricuspid atresia to navigating the uncharted waters of adult care. Leigh sheds light on the emotional toll of her condition, while offering hope and support to others facing similar battles.

A Little More About Today's Guest

Leigh Kamping-Carder is the writer of The Heart Dialogues, a free newsletter featuring candid conversations and writing for people born with heart conditions (and the people who care about them). She was born with a complex heart defect called tricuspid atresia and had three heart surgeries before the age of 4, including a Fontan operation. She is also a professional journalist, currently heading up the newsletters team at one of the top newspapers in the U.S. She has been a reporter, editor and digital journalist for a decade and a half, covering everything from luxury homes to innovation to arts and culture.

How to connect with Leigh

Newsletter: theheartdialogues.substack.com

Twitter: @Leigh_KC

Join the Newsletter for almost weekly content for this podcast and other heart related news.

Join the Patreon Community! The Joyful Beat zoom group is where you'll find connection and hope that you aren't alone in your journey.

If you just want to support the show as a one-time gift (thank you), go here.

**I am not a doctor and this is not medical advice. Be sure to check in with your care team about all the next right steps for you and your heart.**

How to connect with Boots

Email: Boots@theheartchamberpodcast.com

Instagram: @openheartsurgerywithboots or @boots.knighton

LinkedIn: linkedin.com/in/boots-knighton

Boots Knighton

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