Priyanka Saha, founder of the Lily Calvert Foundation and mum to Lily and Jasper, shares her incredibly brave story of being faced with every mother’s worst nightmare, losing her lovely baby daughter Lily at 10 and a half months old due to an incurable brain condition known as Miller-Dieker syndrome. She shares how she came to find out about Lily’s diagnosis in the late stages of her pregnancy and how she and her husband coped with parenting their terminally ill child.

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