E72: Holly Roberts - Larsen’s Paediatric Cancer Treatment Journey and Larsen’s Pride Charity
**Trigger Warning**
Naman Julka-Anderson and Jo McNamara catch up with Holly Roberts as part of the Living With and Beyond Cancer Series (Part 18)
Discussion about Larsen’s cancer treatment journey and how Larsen’s pride charity was formed along with what to expect from them.
To use this podcast as CPD, look at these reflection points:
1) reflect upon your practice in preparing paediatric brain tumour patients, how you can you familiarise them with the space / machines / processes to reduce anxiety and give them greater control over their treatment?
2) reflect upon your communication and use of language with paediatric brain tumour patients, how could this be adapted to help them to understand the process / feel more at ease / be inclusive of communication challenges they may now face? Can you identify what percentage of information is delivered direct to parents to explain, compared to the percentage of information you deliver direct to the child - does this require rebalancing?
3) reflect upon your / your centre’s practice around younger children (< 8) and general anaesthetic; consider the pros cons of GA and the implications for children with brain tumours, and weigh up the implications to treatment against prognosis and the ‘whole’ child.
Complete this form for your accredited CPD digital badge: https://bit.ly/3GbtR1X.
Links from podcast:
It Is Tough and Tiring but It Works—Children’s Experiences of Undergoing Radiotherapy’: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4824387/
Radiotherapy and proton beam treatment for children’s brain tumours: https://www.cancerresearchuk.org/about-cancer/childrens-cancer/brain-tumours/treatment/radiotherapy-and-proton-beam
The Invisible String: https://www.youtube.com/watch?v=WlUxXexjhYI
Children’s experiences and responses towards an intervention for psychological preparation for radiotherapy: https://ro-journal.biomedcentral.com/articles/10.1186/s13014-017-0942-5
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