Sean was a healthy and robust boy until the summer he turned ten; that was when Sean’s battle with gliomatosis cerebri began. Sean was diagnosed with a malignant brain tumor after being admitted into the hospital for seizures during a family vacation in Rhode Island. Unlike most solid tumors, this rare tumor grows like a spider web. The tumor’s rarity, presentation and cancerous threads made an accurate and expedient diagnosis challenging for Sean’s medical team. Dr. Peter Manley of Dana-Farber advised the Jucha family they would treat Sean very aggressively. Sean responded well to the treatment with no disease progression for almost 2 years. At just about the 2-year mark, Sean developed headaches again and his next scan showed the disease was progressing. Dr. Manley then tried "targeted therapy" for Sean's tumor. Unfortunately, this did not work and Sean's tumor continued to progress. Dr. Manley still did not give up and Sean started radiation and chemotherapy again. Sean responded to this treatment and he continued to go to school, play sports and live a normal life. Sean never let his disease get him down, nor did he ever complain. Several months later, Sean began having new symptoms of dizziness and trouble walking.  A new scan showed Sean had a new tumor in his cerebellum which was affecting all his motor skills. He started falling frequently at school. Again, Dr. Manley didn't give up on Sean – he pulled out all the stops and tried to enroll him in multiple clinical trials and was able to set him up once again with additional radiation to his cerebellum. Dr. Manley was very honest with the family and informed them this was only palliative treatment, but it was something he pursued so their family could continue to have time with their precious son. Sean passed away on August 28, 2016, 3 years after his diagnosis. Sean was a huge Red Sox fan and attended many games. He has a younger brother Ryan.